Pharmac notification: Seeking new funding applications for medicines to treat rare disorders

Pharmac is calling for new funding applications for medicines for rare disorders ahead of our Rare Disorders Advisory Committee meeting.

We know that people with rare disorders face challenges including access to suitable health care and accessing effective medicines. We are committed to a regular call for applications for medicines for rare disorders.

We are asking for new applications from pharmaceutical suppliers so we can consider taking them to our next meeting on Wednesday 29 July 2026. We will share the agenda of the meeting in May 2026.Applications must be submitted through PharmConnect by 5pm Friday 1 May 2026.

We also want to hear from people living with rare disorders, their whānau, and health care professionals supporting them. Hearing about your experiences helps us to better understand what we should be considering.Pharmac is available to meet with interested suppliers or other applicants prior to submission of any application. If you would like to discuss the application process, please contact us at raredisorders@pharmac.govt.nz 

• More information about the call for applications is available here

Ngā mihi

Sarah Kendall

Senior Health Technology Assessment Advisor

Pharmac | Te Pātaka Whaioranga | P: 0800 660 050 | www.pharmac.govt.nz